Hubby and I talk about the future a lot. HD is not a pink elephant in our house. We speak openly about it almost daily. Especially lately. H has not been able to work consistently for, well, since I've known him. Since we have a large family money is kind of important. He has been adamant that I not work and stay home and care for the kids. Besides, I have no schooling so working would be almost useless. I will be starting school in Jan for the 1st time ever. As of now I have a plan to get my degree in Respiratory Therapy. That could change slightly. I do know I want to be in the medical field (not a nurse or Dr.). I am interested in that field, it makes good money and it is a position open all over the country. I will one day be the bread winner and I need to pick a field that is going to support my family and I enjoy.
He did just apply for SSI/Dis and to have his V.A. % adjusted. Both his psychiatrist and I thought it was time. He can still finish his degree and even help start the HD foundation we are planning. But since his mood/energy/concentration are always changing holding a steady job just does not work. No reason for him to continue to fail in that aspect over and over. It's hard to have money on our mind along with everything else. But somehow we always make it. God makes sure of it.
I am just so excited to have found this blog. I can't help but keep posting. I've been attending college classes for the past 8 years. My BA looms in the distance. I worry about how I am going to pay for everything, especially when my husband gets sick. He,too, has struggled with working. He has not worked in 3 years. Sometimes it really aggravates me because I think to myself, YOU can work, you are choosing not to. You are taking advantage of me. Get off the couch and help your family. Then I wonder if it really is true that he simply can't. Has his brain changed so much that he really cannot work? I will never really know.
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