Sometimes I wonder if I am the crazy one here. Really, there are days I can't think of anything else other than HD and our current and future situation. I don't necessarily worry, just wonder, dwell, make-up scenarios in my head. I hope that H doesn't think that way all the time. He says there are some days he hardly thinks about HD. I really hope so!
My first couple posts were kinda negative. Here is a positive post for ya.
Today H awoke, after noon like usual. Watched tv for a while and then got the idea to go to the book store. What a change! He is reading the last 3 books of the Left Behind Series. He realized today he doesn't have them so off he went to the used book store. It makes me smile when he gets excited about things.
Last night we put the kids to bed an hour early (thank you time change) and instead of sitting quietly watching Monday Night Football I asked him to play a board game. I love board games! We have quite a collection but don't play nearly often enough. We played ESPN DVD Scene It. He beat me, big surprise there, LOL Then we opened up a new game the kids got last year. It's a kids against parents trivia type game. Whoa, the parent's questions were hard! Can't wait to play it with the kids! It was so nice to sit and enjoy our time together. Lately it feels like we sit in the same room yet don't talk, share, heck, most of the time even touch. We aren't mad, just tired and worn out. So here is a suggestion for you, when you and your spouse are having a hard day, put the kiddos to bed, turn on some music and get out a board game. Best night we've had in a long time!
If you're reading this post go ahead and follow me! Let me know you are here. Do you have a blog? Please let me know so I can connect to you as well. We aren't alone, whether it's HD or any other disease or disability. There are spouses out there with the same situations and feelings we have.
Sounds like a great way to spend an evening! My HD spouse still enjoys playing Yachtzee. I play it with him on my visits. He has only a few activities he can participate in now but the board game he loves! You didn't ask but I will give you my best advice for young parents regarding intimacy and exhaustion- morning. There's nothing like love and then coffee in bed.
ReplyDeleteThank you for the advice. Funny enough that is the 1 area that is perfect for us. At least for now, I will keep that in mind for the future, thank you!
ReplyDeleteI'm following now too. :-) Huntington's, meet Parkinson's. My husband is too young, as well, but here we are. May your journey be as easy as possible. Friends help. I'm Michelle, nice to meet you!
ReplyDelete