I say unfortunately because if you are reading this then the horrible disease Huntington's has made it into your life somehow. Although the people affected are our loved ones, beautiful inside and out, the disease is not.
I'm B and I'm married to H who is + for the Huntington's gene. We are a young couple with children. I have started this blog as a way to share my feelings about HD in my own way. I will be upfront with my readers, I am keeping this away from my husband so I can be completely honest without hurting his feelings. I would ask that only caregivers and loved ones continue, not HD+ people. There are 2 sides to living with HD and I fall on the caregiver side and will write from that perspective.
I like my life, I am very thankful for all my blessings, I am not angry with God. I generally can be found with a smile on my face. However, I am not going to sugar-coat anything I write and hope to be both educating and honest. I apologize if some days are negative but hey, that's life sometimes. I welcome any feedback, questions or discussion from other CG's as well.
-B.
Thanks for your kind words. I will be following your blog and I see I am the first! Your link will be on my FB page as well. I am sorry to hear of your young husband being gene positive but as sad as this disease is it you can still live a rich full life despite it. Enjoy and cherish all the time you have together and know you are in my prayers. Feel free to email me anytime @ lisauncorked@gmail.com.
ReplyDeleteWow your blog is very powerful. I can relate to everything your saying me and my partner arnt even in our 30's yet with a young family and already he is displaying mid stage symptoms. Its nice to know that there is other people out there who are going through very similar stuff as us
ReplyDeletexoxo